heart day.

Valentine’s day takes on a whole new meaning when your child is diagnosed with a heart condition. Suddenly, you start picturing the heart not as the round, welcoming shape you find on cards and in stores. Instead, you see the heart for what it is or what it can be, a mix of vessels and chambers that can rearrange themselves in the womb without notice.

Jackson was born with Tetralogy of Fallot and, though he has officially been ‘repaired’, he will always be a ‘heart baby’. We will always be tied to a region with a great hospital and cardiology unit, always be in and out of appointments, and always be a little bit worried when he runs too fast or breathes too hard.

TOF is only one of a number of different critical heart defects that make up congenital heart disease, a condition that affects one in every 100 children. Check out the video below to learn more about TOF and share your questions in the comments.

 

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